Put on your sneakers with ELA
ELAa family association
Founded in 1992 by Guy ALBA and a handful of parents, the European Leukodystrophy Association (ELA ) brings together families working to overcome these genetic diseases, which destroy the myelin (nerve sheaths) of the nervous system. Every week in Europe, 20 to 40 children are born with these diseases, which progressively lead to the loss of all sensory, motor and other vital functions.
The missions ofELA to beat the disease
Since its creation, ELA has pursued the same missions:
- Helping and supporting families affected by leukodystrophy. ELA provides information on the disease, administrative, social and psychological support, as well as material and financial assistance.
- Supporting research ELA is one of the leading funders of research into leukodystrophies. To date, 559 projects have been funded for a total of 47.55 million Euros.
- Raising public awareness. Numerous events punctuate the life of ELA and, in addition to fundraising, contribute to raising public awareness of leukodystrophies.
- Develop its action internationally. ELA is present in France, Germany, Italy, Luxembourg, Spain and Switzerland. To federate the action of these ELA structures and because research against leukodystrophies is global, ELA International was created in 2015.
"Mets tes baskets": the flagship action ofELA
To finance its missions, ELA created the "Mets tes baskets" campaign in 1994 to raise awareness of leukodystrophies among schoolchildren. Every year, thousands of schoolchildren take part in this citizenship and solidarity campaign. The campaign has now been extended to the corporate sector. Thanks to the Mets tes baskets application, employees can take as many steps as possible to support ELA's fight. An original way to mobilize your company.
Sneakers for ELA
There's a brand new way to support the ELA association! By purchasing sneakers customized in the association's colors, Double G Customs commits to donating 10% of the price to ELA to support its fight against leukodystrophies. Choose from a wide selection of unique shoes in the ELA colors!